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Hwyl
10-16-2004, 06:46 PM
The other morning I woke up really early and was scanning through the misc' non boat related section (the bilge).
I saw a posting by one of my favorite correspondents proposing that the anti social behaviour of the "trolls" in the bilge was because they are "autistic". Following it was a post by another of my favourite posters to support his theory. Now my son is diagnosed as autistic and I am self-diagnosed.naturally I was fuming.
I had to read the postings once or twice while containing my annoyance. After posting myself and asking the offenders to remove their posts, they both did and I was offered what I'm sure were heartfelt apologies.

I did mention in private mesasages that I thought many sailors might be autistic and that i had written an article to that effect. I thought about posting it. Well here it is. Sorry it's so long, I've edited it a little to make it relevant to WBF.

[I]We all know the type of sailor I'm talking about, the words we normally use don't really describe him (it's almost always a him), we use the words diffident, loner, solitary, we even have single handed races especially for this type of sailor, although there are always a sprinkling of truly gregarious competitors in single handed races. A poster child however would be Mottisier.

I'm talking about the kind of sailor who is only really happy when he is sailing, he is dependable, organised and logical. He is usually not too worried about the kind of boat that he is sailing, but even when he is on a powerboat you will often see a jury rig or steadying sail.
I know of what I speak, because I fit the parameters that I have just listed, it was first commented on by friends who said things like "I never saw you smile until we went sailing". I have spent a great deal of my life in around and on top of boats, especially sailboats, I have been lucky enough to have had the experience of a diverse number of boats and there have always been rational reasons for the absolute satisfaction and enjoyment that I get from them. Whether it was that aggressive win by the thickness of the headstay fitting whilst team racing at college, or slowly drifting to within a few feet of a resting heron, or my first transatlantic landfall, or even sailing a hundred foot schooner rail down in the Caribbean with pilot whales alongside. All of this is heady stuff, but always there seemed to be an indefinable extra to my enjoyment. The fact that I liked any boat no matter what, even if I rationally thought about all the reasons for my liking boats, there was always a synergistic effect

Others seem to have the same affliction; captains of industry, who are delighted to be invited for a sail in a Bequia "twobow" boat, Wall Street financiers who spend their Winter weekends racing badly designed tiny dinghies in freezing conditions. Maybe even you, the reader who spends a disproportionate part of your income on a sailboat. In fact the whole sailing game seems an irrational waste of money when looked at in a logical way.

Ten years ago my son, who was three at the time was diagnosed with P.D.D. autism, after I had gotten over the shock and denial phase, I studied the problem in depth and especially the hereditary issue. It all seemed remarkably familiar. When the occupational therapist came back from testing my son, and stated; "Mr. Hughes, your son likes being in small spaces and also likes being rocked", light bulbs started to illuminate in my head. She did not seem to catch the implication of my reply, which was; "isn't that strange, I've enjoyed living on sailboats for ten years".
Autism is described as a symptomatic disease, which is the medical profession's way of saying that they don't really know what causes it, but they do can parcel the symptoms together. Some of the symptoms include;

An inability or an unwillingness to communicate well.
Insistence on sameness, resisting change in routine
No real fear of danger
Little or no eye contact
Unresponsive to normal teaching methods
Sustained odd play
Preferring to be alone
Noticeable physical overactivity or underactivity
Tantrums
Inappropriate attachment to objects
Uneven gross and fine motor skills
Thinks in pictures
Learns by doing rather than watching

Now the preceding list pertains to almost every obsessive sailor that I know, I am not making light of this situation, as the parent of a child with P.D.D. Autism, I live the reality every day. Nor am I saying that every sailor fits somewhere on what doctors call the P.D.D. Autism spectrum. I am however saying that I probably do, and so does my wife and that Autism is an inherited condition. I know that sailing is being used as an educational tool more and more, my hope is that it can be recognised for it's therapeutic value in the case of Autism.

For the time being my son and I love to go sailing together, as a baby he would fall into a deep sleep almost as soon as we got on the boat, now he sleeps maybe half the time, I distinctly remember the incremental improvement in his demeanor one day when we chartered a boat and sailed out to Damariscove Island in Maine, it had been a tense Summer with our business and our son seemed to have no outlet for his frustrations and was often close to uncontrollable. He had an after lunch nap, and just stood in the companionway as we slowly sailed and drifted back to Christmas Cove, he was animated and interested, but totally self controlled, the perfect child, an unusual occurrence in those days.
I spent some time in the Summer of 2001, offering sailing to other Autistic children. By the very nature of this population it is tough to measure success, the only measure that I have is that parents and caregivers were wildly enthusiastic, and that they saw their children reacting and participating in a positive manner, even though that might not be obvious to an observer who was not aware of their "normal" benchmark demeanour. I only know of occupational therapy as an observer. I also know that there is a field called recreational therapy. I feel that the foregoing fits under the aegis of recreational therapy, and that probably many members of WBF have been self-administering recreational therapy for years.

I would urge readers to seek out autistic children and offer to take them sailing. Please listen to feedback from parents and caregivers. Let's hope that the new crewmember becomes a delighted and delightful addition, but most parents of these children would be happy with descriptions such as "a little more enthusiastic" or "more engaged than usual".[I]

[ 10-16-2004, 06:50 PM: Message edited by: Hwyl ]

John Weigandt
10-16-2004, 08:06 PM
really strange that my return to the forum would be at the same time as this message is posted. My son (now in 5th grade) is also a PDD kid. The intellegence is amazing, but the specific deficits in motor function and writing ability are also equally amazing. He could identify specific species of moths for the science teacher at school, from his "Ranger Rick" magazine, but couldn't tie his own shoes till about 4th grade.

He gets OT and Language help at school, along with teaching by wrote, social cues and skills to interact with other kids. He's come a long way in the last 2 years, since his special program was implemented.

He can steer a sailboat though.

We went on a multi day cruise in our tiny sailboat this summer, just he and I, 2 days travel to Florida, 3 nights on the boat, and 2 days back. A whirlwind tour. For a link to a write up of our cruise, see the boats/plans section, and the title "The much lauded and maligned weekender".

Good luck with yours

John

Bill Dodson
10-17-2004, 09:13 AM
That was very interesting, Hwyl, thank you for sharing it. I can certainly see a lot of myself in what you describe.

Bill

Jeremy Burnett
10-17-2004, 12:42 PM
I would also recommend rowing.My wife Adrie and I belong to a group that teaches what we here call "Special Needs" children how to row.These children are not as disabled as autistic children but have various mental and pysical problems that mean that main stream education is not for them They go to a special school.They come to the boat site one day a week in season and we teach them to row and some sailing in optimists and other small boats.The centre is run by a trust headed up by a qualified instructor.The effect on the children is very noticeable,given that they have been going through life without much progress most of them find this is some thing they can do and find rewarding.Their confidence etc increases.At the end of the course they get a certificate which they are proud to receive.I have also come across larger boats particularly one from Denmark that took delinquent youth on voyages as an alternative to detention.This whole area is very interesting but Im sure boat or seatime is advantageous for many for whom formal education systems do not fit the bill.

yorgie
10-17-2004, 02:08 PM
Thank you for sharing your story Hwyl,I also see a bit of myself in it.I'm not sure if there is an increase in autism but a decrease in the physical activities that were satisfing to those with autistic symptoms.Cycling is probably another great activity,physical effort,rewarding challenges and changing scenery.Some of my best times were cycling through Europe.I hope to gain the same satisfaction sailing in my restored sailboat through the Gulf Islands next summer.

Steve Lansdowne
10-17-2004, 10:55 PM
Many individuals have traits that, in their extreme form, are classified as mental "disabilities." Only if these are so pervasive as to inhibit daily functioning in some way are these classified as disabling, however. Neatness taken to extreme becomes obsessive-compulsive disorder, and so on.

Hwyl
10-19-2004, 08:41 PM
Thanks for your kind responses.

Jeremy your response and a couple of emails I received have made me decide to rekindle the autism and sailing program for next year.

I agree with the concept implied (I think) in Steve's posting that there is far too much labelling and remember that I have never been labelled. I was lucky that I had some great teachers who saw potential in me (some of whom introduced me to sailing), but I also had teachers who threatened to cane me for "not trying hard enough", because "I could clearly do better". This was based on the exam results--My results would swing wildly between subjects. I'd be top of the class in some subjects and near the bottom in others.

[ 10-19-2004, 08:41 PM: Message edited by: Hwyl ]

Steve Lansdowne
10-19-2004, 08:55 PM
Attempting to motivate others by putting them down or telling them to try harder is not necesssarily productive, as you know. Somtimes "trying harder" is not a solution to getting the job done, as in when a lack of effort is not the problem. It is often difficult to know, however, whether someone is trying their best or not, and even the well-intentioned can make mistakes as they attempt to motivate others. A bit of compassion from someone who cares about you can go much further toward helping you succeed than can a threat from someone who carries a big stick.

Phil Young
10-20-2004, 11:30 PM
Interestning stuff about autism. I have a good friend who's children have recently been diagnosed with some syndrome close to autism. I worry though about the "political correctness police" who from time to time decree that a certain phrase has become too burdened with negative connotations and should no longer be used. Or that we can no longer use a phrase in a way that might carry negative connotations. A local charity organisation called the "crippled childrens' association", which has been around forever and is well respected, has recently decided to change its name to "novita children's services". Cripple has too many negative connotations, so they are spending a fortune rebranding themselves. Just stoopid I reckon.

Ian Wright
10-23-2004, 08:22 AM
Originally posted by Hwyl:

An inability or an unwillingness to communicate well.
Insistence on sameness, resisting change in routine
No real fear of danger
Little or no eye contact
Unresponsive to normal teaching methods
Sustained odd play
Preferring to be alone
Noticeable physical overactivity or underactivity
Tantrums
Inappropriate attachment to objects
Uneven gross and fine motor skills
Thinks in pictures
Learns by doing rather than watching

[I]Have you been spying on me?
I knew I was a bit dyslexic but autistic too?
Oh well,,,,,,,,,

IanW

WindHawk
10-29-2004, 08:17 PM
One point, which we all must remember, is that the human mind is a continuum, and the subtle symptoms that often occur in the edgewise capable are really just a revised, and moderated, aspect of a similar condition that may be found in the diffucult cases (IMHO).

Think of the varying degrees of depression that occur, and I believe you're on the right track. It streaches from the mild, to the moderate, to sucidal. And woe to those families in any situation.

My heart goes out to you folks who are dealing with profound instances of this oddly terrible disease. Take care of yourselves.

I do believe, and I have been thinking about this for some time now, that you are correct in your evaluation of solo sailors. Organized, self-sufficent, and looking at a profound vision of the world that is only remotely accessible to the rest of us. That seems to describe these folks most correctly.

A smile on a childs face is worth the world, and whatever we can do to provide a smile to a little kid is an effort well spent. If this idea of sailing works for these children (and adults), then pursue it with all of your might.

Wild Dingo
10-30-2004, 04:27 AM
Weird... I mean those traits fit me to a tee... and Aaron for that matter... but then he was diagnosed at 6 as ADHD and medicated with Dex till age 14 when the peadiatritian decided he should be on either a higher dose or on Retlin {however you spell it!} at which point I decided I wanted my son back without medication.

Not to wander to far off track... he was less than 4ft tall weight of 5 and a half stone sopping wet at 14 years and behind his peers in every class except science and math very focused and retaliated and raled against any change in his ordered life... till we stopped the meds... then he changed within 6 months he was 5ft tall and now is pushing up to 6ft at almost 18 and weighs in at close to 12 stone of solid muscle... at school in his last year he was put into what they term "voc ed" simply because and quote "the teachers cannot nor should they have to handle him" so he was shoved into a class with people he detested doing subjects he loathed and learnt zero and attended less than 3 days a week... now thing is that once I got him onto a boat in his case canoeythingy he was off like a trot I mean he just paddled and drifted and loved every second of it he became focused on learning all about canoeing and kayaking he loved the cat when we went out on that and spent an entire day fiddling with the sail "to get it as it should be dadda"

Now Im wondering... since I always thought I was an undiagnosed ADHD person am I also an undiagnosed autistic one as well? Im never so much at peace within and with the world as when alone either sailing canoeing driving wandering the outback always focused and aware... whereas anywhere else and my mind takes flight at the slightest provocation and I tend to have the attention span of an gnat!

Maybe Im just a plain mad buggar? ah well so be it at least Im a happy mad buggar

Oh on another note! In me wanderings today I went to a car auction a couple of miles away and passed by the local "disabled" employment agency... and well seems someone has knicked me idea of either building or repairing an old wooden boat for use by the local "disabled" people! Theres this bloody great hull sittin on the deck props along the sides and some planking off so I reckon someones doin something!! AND WITHOUT TELLIN ME!!! EGAD Thats just not on!!... I will wander back on Monday and check it out and get the lowdown... pics to follow :D

Thanks mate!... great thread sorry to meander of tack so far but I reckon your a great bloke and will let it pass ;) :cool:

Gary Piantedosi
10-30-2004, 11:06 AM
Hwyl - your thoughts regarding recreational therapy could not be more true. I'd invite you to check out this site for Access Sport America: http://www.accessportamerica.org/index.html A very good friend of mine, the Rev. Ross Lilley, developed this program after he taught his own son, Josh, how to windsurf. Josh has cerebral palsy and developmental issues. One of the partner programs is the Doug Flutie Foundation for Autism. I volunteer to design and build the adaptive equipment necessary for these activities. I also run their Mayors Cup Race for outrigger canoes on the Charles River every June. You and your son may want to come down for that race. This is my favorite charity and as I sit here writing this I am motivated to go out in the shop and finish a project for them that I have been putting off.

Take care, Gary

Dave Hadfield
10-30-2004, 11:54 AM
I don't know how I could take care of Drake if I wasn't obsessive/compulsive! Or how I could get the best out of her. ("Dad.... (rolling of eyes) we don't need the mizzen staysail -- we're going quite fast enough!")

Hwyl
11-10-2004, 07:05 PM
Thanks for all the nice responses to this thread. Gary, i have bookmarked the site you suggested and will be down in the Spring.

Daniel T.
11-10-2004, 09:05 PM
My son is going to be two in June and has been diagnosed as having autistic tendencies. He progresses every day, but to this point he is a year behind developementally. I came to this site a year or so ago looking for advice concerning a boat(sail) I plan to build, and for the pleasure I get from reading the tales you all tell of Building and boating. Many kind and intellegent folk on here. I too was brought sailing as a young boy by my father. I also poses many of the traits you spoke of. I never gave any of them much thought except one, why I am drawn to the water and sailing so strongly. Maybe in my case it isn't autism, and perhaps it isn't in my son. But if he gets half the joy from it that I do, then no effort is to great. And who knows, perhaps my wife won't think i'm mad after all. Sorry this is so long. And thank you for this thread. Daniel

LeeG
12-16-2004, 10:36 PM
Aspergers syndrome?